Around April, which was 4 months post IVIG, we were losing hope. I was getting worse. Much worse. Not only had Tourette’s taken over me, but my anxiety was so debilitating that I was missing a lot more school. My second semester consisted of two classes at school and four classes online. I was down to only making it in for one class, and that was only when I had enough energy to climb out of bed and go. Eventually I stopped going completely. I was doing the two classes from home as best as I could, and trying to keep up with my online classes.
I believe it was April 10th. I had a haircut and then ran some errands with my mom. We grabbed some a TBell for me since I had to go to work straight after. I walked in and was there for about 10 minute when they anxiety kicked in. I started having a full blown panic attack. Too nervous to tell my manager, I went to the bathroom to try to calm down. However, my ticing was out of control. My anxiety was through the roof, and I couldn’t stop the crying. I told my manager I got sick and had to leave. I raced home to the comfort of my bedroom and caught my breath. From that day on, something in me had changed. I was unable to go out in public. Although a doctor never said it, I basically developed agoraphobia. I had always had issues with big crowds but now it was too the point that I didn’t want to go anywhere. School, work, the mall, the grocery store. All of it sent me into a full panic attack and a heavy bout of ticing. To avoid that, I avoided going out all together. I stopped eating at the table with my family and started taking the food to my room. I started refusing my medicine for fear I was allergic to it. My insomnia increased to the point that I wasn’t falling asleep until about 7 am. I could no longer sleep in my bed. I couldn’t be anywhere other than my room for too long.
In the mean time we started seeing an integrative doctor who ordered about 24 blood tests, a urine test, and a saliva test. From that, we discovered I had low cortisol levels in the morning and high levels at night. I had an under active thyroid, high iron, and another test that indicated two things. Either I had mold toxicity or I had lymes.
My mom tested our house for mold but it came back negative for any harmful mold. We had always wondered if I had lymes. In 4th grade I had a tick bite but I was put on antibiotics as soon as we found the tick. I have all the symptoms of lymes – joint pain, muscle acges, fatigue, headaches, and insomnia. My leg has the strange marks that indicate Bart’s. I have tested positive for myco which is a common co infection of lymes. I still need the Wester Blot to confirm but we are pretty positive I have lymes.
I am on doxycycline and azithromycin. I take supplements – magnesium, vitamin B, C, and D, L-theanine, 5HTP, zinc, and probiotics. I also take prescription cortisol and thyroid medicine. I have made diet changes – no MSG, no aspartame, low sugar, no artificial flavor or colors, and no fast food. I have managed to start falling asleep around 2 rather than 7.
Unfortunatley, the tics are the worst they have ever been. The anxiety is through the roof. I still have aversions to medicines and foods for fear I am allergic. I still can’t go anywhere without having a panic attack. I am at a personal all time low as it’s taking a huge toll on me and my family.